Friday, July 31, 2009

When Life Fell Apart

Eighteen years ago this week, my life ceased to exist as I knew it. You could say the lights went out in Georgia so to speak. Everything I had known up until this point had morphed into ways that I did not recognize. It was like I was viewing my life as a spectator from the outside.

It all started with so many changes in my life through various jobs, relationships, friends and events which seemed to be all part of my normal day, were nothing short of epic adventures. No Hollywood movie producer could have created a more robust picture than my life had portrayed on the big screen.

Just a few days before this, I knew that things were not going in the right direction for me but I had no way to find reverse. It was as if a steam train was racing full steam ahead to a cliff as the engineer knew the brakes did not work. I knew deep down and even stated it to a work colleague that "I was about ready to lose it in life". I did not have enough self confidence to understand that I could change the upcoming course of events and I was too weary and tired of fighting. All the strength and energy I knew, had been consumed in life. There was nothing more for me to give and nothing more for me to draw upon.

At first, it started out as a sore neck muscle which the Chiropractor was helping me to get relief from. However, it was not long after a treatment would be over that the stress and reality of life would weigh in heavy on me again and the pain and stiffness and soreness would come back with a vengeance. There was no escaping it. There was no running from it anymore. I tried to out run it but I could not run fast enough.

As the days and the weeks progressed, my body fell into surrender to something that seemed to completely overpower and overtake me. It robbed me of all my control. From soreness and stiffness into the paralysis beginning in my legs, then being accompanied by seizures, extreme exhaustion, fits of crying, confusion, feeling delirious, shaking, and just an overall desire of wanting this life to end through suicide. Trip after trip to the doctor's office with emergency ambulance rides to the hospital, I was met with confusion by the doctors and test after test revealed nothing concrete. Each trip, the doctor would send me back home to fend for myself while my family and friends tried to figure out how to take care of me. And while I was an alert, open eyed human being, there was very little I could do. My control over my life was gone. It was as if I was a passenger and a puppet master was pulling the strings.

More tests and hospitalization came next with the doctors still quite uncertain what was going on. No one had answers and all anyone around me had was plenty of questions. During one of the final muscle stimulation tests, my body determined it had enough of everything and when I woke up, there were doctors and nurses around me along with so much equipment as I saw the doctor above me getting ready to bring the paddles on to my body to bring me back. It was then that I knew I had come to the end of my road. It was the edge of the cliff.

So I remember laying in my hospital at the age of 25, thinking what has become of my life. I could no longer feel a needle being touched on my feet. My name was a very difficult thing for me to remember. Speaking a few words took forever and felt like it took more energy than climbing the world's tallest mountain. Movement was a gift if it was possible but then only something that would take forever to accomplish. Memory was gone to some far off place. And so, I was left alone with myself and my few limited thoughts. Is this the way I'm going to live out my remaining days if I have any more left? Am I going to lie in a bed as a vegetable, not being able to do much for myself or barely being able to speak a few words. Was this all I wanted for life? Was it all I could expect?

I remember making a decision to myself where I reached down deep that I did not want to be this way and I was not about to accept that which had caught up with me. This was not the way I wanted to function in life. It was not how I wanted life to be. In my mind, I made the decision that I had to fight with all the strength I could find and then some. This would not be easy but I was not going to accept the current condition I was in.

Through some miraculous insights by a neurologist, she spoke the words that began to show me a new path forward. Those words were in the form of a question "have you been through a lot in your life?". This questions was followed up by "would you like to talk to someone?". Those two questions were the beginning of my road home and led me to a psychologist who helped me chart the path ahead and it was at that moment, that I once again took my first step in physical therapy.

It was not an easy road ahead learning to walk again or just how to sit up and use my arms, my fingers, my voice and functioning in a normal way that most humans do every day. From getting myself around by a wheel chair in and out of doors and entrances to trying to walk up an incline and retain my balance, it was an epic fight that I fought. Just finding the strength to do this before exhaustion set in was like winning a gold medal to me.

Through time, therapy and healing, my body began to come back. Of course, new challenges would present themselves but knowing that if I kept myself going and remembering how I brought myself back, I knew I could do this. For learning how to take that first step again has given me so much courage and determination in life. It has provided the fuel and the energy to continue walking down the road of healing that I have had to do in my life.

None of this has been easy and there have been many days when I just wanted to give up. Some days, it has been hard to muster up the courage and the strength to take those difficult steps. It would have been far easier to just say I've had enough and stop. However, I knew that if I did this, it would mean my death. I had already been down the road of no return and I know that if I do not continue my journey that there may not be another second chance in life.

I find it amusing that churches teach about us going to hell when we die but I know from the cold hard reality that hell exists here in the present moment. It is not something you have to wait to experience when you are no longer alive. I've been to hell and back and now that my life is moving forward, I no longer fear all that for it is so familiar to me as if it is my hated and beloved twin.

Fortunately several years ago, I met some wonderful individuals who are now part of my life. Through their love and acceptance, they have helped me realize that while I've seen the dark side of life, there is a good side. There has been one individual that has helped me heal in ways that I was not even aware of. I had no idea how to continue my journey and I was growing weary but this one individual has helped me walk many miles down the path. This person showed me that all I did need was located right within myself and knowing this has given me so much freedom, so much strength and healing beyond my wildest imagination. I have been a witness in my life to having the right individuals come along at the right moments. Without them, this journey would have been more than I could have endured.

Life still presents its challenges to me each and every day. I'm faced with struggles of the past and how they impact my current day but I'm also given new opportunities to grow. Some days, the challenges seem more difficult than I care to embrace but I am constantly reminded of just how hard it was to take that physical step some 18 years ago and knowing I had the strength to do that, I know I have the strength to do it now.

The name the medical establishment gives to the condition I had is called a Conversion Disorder or according to Freud, "hysterical paralysis". You can google this condition and read more about it. To this day, I've never met anyone who has been through this in the way I have. It is rare to go through it in the manner that I did. Many people experience parts and pieces of this every day in their life only to a different degree. Many people who have experienced a Conversion Disorder from what I have read, don't always come back and recover. It is difficult. If you or someone you know has been through this, I'd love to have contact with them. I know there are others.

Just a note about the picture in this post - this picture was taken during the time I became paralyzed. This was in the early days before I had been hospitalized. Even though I'm trying to smile, I was struggling every moment just to make it.

Thursday, July 30, 2009

A Tribute To My Mom


Someone recently asked me how I was like my mom and so I wrote the following. I realize this is personal but it helps give me a connection in life. It is another tribute to my mom, who made so much of a difference in my life.

My mom was a very warm, compassionate, caring and insightful lady. She was a beautiful lady that never showed her true age (much like I do and her father did). She was more creative than I realized through cooking, baking cakes and just in about everything she did. She was so intelligent and saw things that most others in this world just don’t see. She picked up on things that were going on with me, yet I never spoke about. She’d know what I was thinking and feeling right down to the detail without me saying a word. She just seemed to know things and to know how to navigate through life. I’ve only seen one other person who similar signs of just knowing things (and I don’t mean in a general way but in a very detailed way). And not just knowing but the accuracy of it is beyond my comprehension.

She always wanted to take piano lessons but because her alcoholic father spent their money on his booze with his Masonic Lodge friends, she never got to do that. Yet, she could sit down at my piano and pick out little tunes without knowing where a note was on the piano. I once began to teach her some of the notes on the piano. She was the one responsible for making sure I had the opportunity to take piano lessons when I showed the desire for it.

She was the peace maker in the family much like I tended to be later on until it took its physical role on me. She worked for many years as a nurse in health care especially trying to help the elderly. I worked in a nursing home when I was in high school doing maintenance and loved every moment around the elderly and now I also work in a health care related way.

She was a good communicator both in speaking and in writing, all though she considered herself to be shy and I think she struggled with self confidence. She would often teach Sunday school classes that I was in (not my two brothers for some odd reason) and she would often volunteer to put together Christmas programs for church. She answered the main phone and was a receptionist for a long time in a couple of companies and her voice was always so pleasant. She could be horribly sick that day, but you would never hear it on the phone through her voice. She tended to hide a lot from almost everyone.

Even in the midst of all that she endured and we endured, she tried to show us compassion and love and understanding. She had her faults and her own mind sets but she was more accepting and understanding in the world than most people were. She was a very simple lady, not asking for or desiring much for herself. She however, tried to do as much as she could for her family and especially her children with the limited resources she had. She tried to help me excel in every way that I could and she tried to protect me as much as she could.

My mom was a very strong lady through her personality and through what she would do physically. Although if you saw her or were around her, she would seem very meek, mild and like one of those people who you just enjoy being around. She made friends easily at church and if someone needed something, she found a way to help out.

I remember having so many Sundays where our resources were limited but she’d invite people over for our Sunday meal. She seemed to enjoy that. As a child, I remember her bringing some of the residents home from the nursing home where she worked for Thanksgiving and Christmas so they wouldn’t have to spend it alone. Most of the time, these people played the piano so it was an extra treat for me. And when we took them back to the nursing home, we would drive around town looking at the Christmas light displays.

I’m sure I’m missing half of the stuff about her but she gave so much and if anyone showed me that love did exist in the middle of the horror I lived in, it was my mom. When my mom died, I had not been able to talk to her for the last 10 years and that made it difficult. However, I’ve seen very clear signs that she is around me constantly and supporting me.

There was a park in Miami that I went to shortly after I found out my mom had died in a car accident. It was one of my favorite parks. That day, it was raining but I saw the park bench where I was at, have a gleam of sunlight shine upon it and the rain stopped in that specific moment while the rain continued around it. Another year, I was there walking in the park on the anniversary of her death with Jeff and it was a very hot and still day. The wind was not blowing at all until I was talking about her and then it came up very strongly just in the exact place we were at but in no other area of the park because I checked the trees out for movement. I do feel her around me and have had several people say they see her around me as well.

Oh one other thing that I just remembered was that we both loved animals especially cats.


http://mothersdaymusic.net/

 

Wednesday, July 29, 2009

Death by Medical Error



Something to think about


The IOM (Institute of Medicine) estimates that between 44,000 and 98,000 people die each year from medical errors.





Even at the lowest rate of 44,000, it is higher than the annual mortality from
  • Motor Vehicle Accidents (43,458)
  • Breast Cancer (42,297)
  • AIDS (15,516)

Medical Errors are the eighth leading cause of death in the United States.

A study by AHRQ (Agency For Healthcare Research and Quality) found that just one type of error, preventable adverse drug events, caused 20% of the yearly patient injuries or deaths in the hospitals that were studied.

I learned a long time ago, the hard way, that doctors in all of their testing and science and education do not have the answers. If a human does not search out through their own wisdom and knowledge in conjunction with modern health care that is available, than they are only blindly being led along life's path as sheep heading to pasture.

There is so much more we can do as humans in our own health care that does not require drugs, surgeries and billions being spent. However, if the first thing we do when we suffer any type of physical condition is rush towards the status quo in medical care, that we have given up on some of the most valuable cures in our life - that is the healing power within the human body and the awakening to so much more.

Don't wait until you are sick or in pain to start seeking the most healthful route for your life. Begin today listening to your body and taking appropriate steps to take care of yourself. Only you will know what is best for you to do and if you take those steps, your body will be a much happier place to inhabit. Not all health care comes in a pill, a syringe or a surgery!

Copyright




Blog Post And Images (c) 1/01/07 by Don Shetterly
  • Permission required in writing before any part of this blog is reprinted, reworded, transmitted or used in any format.
  • Feel free to share the blog post LINK and a brief summary.
  • https://mindbodythoughts.blogspot.com

  • “Amazon, the Amazon logo, MYHABIT, and the MYHABIT logo are trademarks of Amazon.com, Inc. or its affiliates.”